Let’s begin at the start
I am a proud mama to my lovely 11 year old daughter Emily. She has spina bifida and hydrocephalus. We are proud to be part of a community of parents who have children with disabilities. Emily is completely bonkers, just like her dad, Dan. I am not taking any responsibility….I’m the most sensible one (according to Emily).
Together we are rollin!
Before she was born, we were completely ignorant to the world of disability. So a lot of surprises, learning, setbacks and excitement awaited us, and it hit us hard like a brick wall.
Emily is our only child so Dan and I were learning how to be new parents, change nappies, getting her to sleep, us not having any sleep, learning not to bounce her up and down immediately after she had eaten, and remembering to strap the carseat to the car’s seat before we drove half way down the road….the usual.
Bang!….There goes the wall
On day 10 after she had recovered from her first operation, Emily came home from hospital. Up until now, the nurses had done everything for her. We had to learn to be paediatric nurses and physiotherapists as well. AAAAAHHHHH!!! PANIC!! WHAT AN EARTH ARE WE SUPPOSED TO DO?
We had to learn on our feet. Luckily we have a lot of supportive family and friends around us, to help make this slightly easier, but we were still punching our way out of a paper bag. We got it wrong a lot of times, still do. Dan and I decided that whatever was going to come our way, we would all try to have fun, and give Emily as many opportunities as we could.
We found plenty to laugh about. Wind..mostly…yes, that was and still is our level. We also found plenty to cry about.
So why the blog?
Throughout these 11 years, we have discovered a many friendships, through charities, community groups, Emily’s nurses and doctors. People to share experiences with, people ‘in the same boat’. Friends for Emily to play with who had something in common with her. It’s has been and still is great therapy for us all. Especially when we are having a rough day, and everything has gotten on top of us.
I want to be able to grow my friendships with this blog. I would like to invite any of you who are going through a similar thing, to join and link up with other parents.
So who’s rollin with me?
Calling all parents of children with disabilities, come and subscribe
So we are all raising kids with disabilities together.