image representing epilepsy with a lightening strike in the head

‘Revelation’ Poem by Jenni Williams 

Severely disabled
Epilepsy
Global development delay
Special educational needs

 

My daughter has many names

Monkey, Pickle, The Tiny Tornado

I like the ones that speak of her spirit, her energy, her love of life
Names that shatter stereotypes

Not for her the sad piano music, conjuring pain

Like needles in the heart
Her soundtrack is a loud and joyful orchestra
With mischievous melodies and the hammer of drums
A wild and wonderful wall of sound

I was blind before

But now I see
She gifted me with fear
I chose light
Rebirth

Of all her names

One shines above the rest
The name I gave her

Eve

The original

The rebel

The reason

 

Eve is paradise

bird of paradise flower - revelation


Acknowledgements:
With thanks to Dan White, ‘Amazing Grace’ and ‘I Am Eve (I Am The Reason)’ by Harpeth Rising.
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Jenni Williams

Jenni Williams likes dogs, craft beer, Radio 4 and nice people. She would like to be a non-struggling writer one day. Her dream car is a blue pick up truck.

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Aimee

I'm Aimee, and this is my daughter Emily. Emily has spina bifida. I have always found talking to other parents or people with disabilities reassuring. The disabled community is the best community to be part of. I created Rollin' With Mama so we could all share experiences.